Association of Kinesiophobia with Quality of Life, Hemophilia Joint Health Score and Physical Activity Level in Patients with Hemophilia: A Brief Review

Poonam Deshwal, Dimple Choudhry, Sudhir Kumar Atri

Abstract: Hemophilia is a congenital clotting disorder inherited in an x - linked recessive genetic pattern which leads to lack or failure of a blood clotting factor VIII (Hemophilia A) and factor IX (Hemophilia B). Most common complication of hemophilia is Hemarthrosis (joint bleed) which lead to severe pain, restricted movement, and joint damage over time. One of the growing concern in hemophilia management is kinesiophobia (fear of movement) leads to sedentary lifestyle, worsen joint condition, muscle weakness and decrease all over physical fitness. This emphasizes the importance of addressing kinesiophobia, physical inactivity, joint health deterioration and psychological well being in the overall care of these patients. To determine the association between kinesiophobia, quality of life, the Hemophilia Joint Health Score, and the Physical Activity level in patients with Hemophilia. . This narrative review is conducted on databases from PubMed, Google Scholar, and ResearchGate. This review included 11 studies on association between kinesiophobia, quality of life, the Hemophilia Joint Health Score, and the Physical Activity level in patients with Hemophilia. In conclusion, many studies show us different parameters between joint health physical activity level and quality of life in hemophilic patients but there is no research showing us the association between kinesiophobia, quality of life, the Hemophilia Joint Health Score, and the Physical Activity level in patients with Hemophilia.

Keywords: Hemophilia, kinesiophobia, joint health, Quality of life, physical activity